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 Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program Description: Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis. (cincinnatichildrens.org) |
| Information and support for persons affected by Tuberous Sclerosis Complex in Canada. Description: Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections. (tscst.org) |
| Kolten's Tuberous Sclerosis Page Description: Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him. (Kolten.homestead.com) |
| Marian's Life with Tuberous Sclerosis Description: Marian's story. Information about the disease, pictures, contacts, medicine, links. (expatworld.de) |
| Matthew's Site for Tuberous Sclerosis Awareness Description: Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories. (angelfire.com) |
| National Library of Medicine Description: A list of synonyms, a summary and major features of tuberous sclerosis. (nlm.nih.gov) |
| NORD: Tuberous Sclerosis Description: Offers alternative names, a general discussion and further resources. (rarediseases.org) |
| Pediatric Oncall- Tuberous Sclerosis Description: Offers commonly asked questions about this disease. (pediatriconcall.com) |
| Team Tamara Description: Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates. (team-tamara.org) |
| Tuberous Sclerosis Description: A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke. (ninds.nih.gov) |
| Tuberous Sclerosis - Lisa's Site Description: An incurable genetic condition that causes tumors to grow in various places in the body. (title14.com) |
| Tuberous Sclerosis Alliance Description: US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families. (tsalliance.org) |
| Tuberous Sclerosis Association Description: UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition. (tuberous-sclerosis.org) |
| Tuberous Sclerosis Fact Sheet Description: Developed by the National Institute of Neurological Disorders and Stroke (NINDS). (ninds.nih.gov) |
| Tuberous Sclerosis Hub Description: A brief definition of, followed by links to overviews, research articles, case reports and images. (healthubs.com) |
