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 Elizabeth's Page Description: Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life. (our-sma-angels.com) |
| Emily's Walk for Life Description: Information about an annual walk to raise money to find a cure for spinal muscular atrophy. Learn about SMA and read Emily's story. (emilyswalkforlife.com) |
| Families of SMA (Spinal Muscular Atrophy) Description: International support group and resource center for this disease, includes current research. (fsma.org) |
| Families of Spinal Muscular Atrophy Canada Description: Canadian charity supports research into a cure for SMA. (fsma.org) |
| FightSMA Description: Web site promoting public awareness for spinal muscular atrophy. (fightsma.com) |
| GeneClinics SMA Information Page Description: Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing. (geneclinics.org) |
| Ilsa's SMA Resources Description: A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa. (smaangel.com) |
| Kennedy's Disease Information Page Description: Information page compiled by the National Institute of Neurological Disorders and Stroke (NINDS). (ninds.nih.gov) |
| Our SMA Angels Description: Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting. (our-sma-angels.com) |
| SMA Angels Support Site Description: A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman. (smaangels.com) |
| SMA Support Inc. Description: A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA. (smasupport.com) |
| SMA2 Ian Paul Description: I am two years old and I have SMA2. (geocities.com) |
| Spinal Muscular Atrophy Description: This site contains a collection of material pertaining to SMA. I have been searching facts on SMA ever since our son was diagnosed with the disease in 1994. (members.rogers.com) |
| Spinal Muscular Atrophy Foundation Description: Information on SMA, and the latest updates in research, treatment and funding. (smafoundation.org) |
| The Sean W. Venezia Foundation Description: Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I. (smafund.org) |
| Theo's Story with SMA Description: A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French. (mysunrise.ch) |
| Tori's Buddies Description: Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA. (fightsma.ca) |
| Washington University of St. Louis: Neuromuscular Description: Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical. (neuro.wustl.edu) |
