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home > neurological disorders > muscle diseases > muscular dystrophies > organizations

Muscular Dystrophies - Organizations

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      new window Cell Therapy Research Foundation Description: Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials. (celltherapy.com)
new window Facioscapulohumeral Muscular Dystrophy Society Description: The FSH Society address issues and needs related to FacioScapuloHumeral Muscular Dystrophy (FSHD). (fshsociety.org)
new window Focus On the Cure Foundation Description: Focus On the Cure Foundation raises funds that go directly toward supporting research for a cure of Duchenne Muscular Dystrophy. (adkconnection.com)
new window Foundation to Eradicate Duchenne, Inc. Description: FED is a non-profit organization established to find a cure for Duchenne Muscular Dystrophy, the leading lethal childhood genetic disease. (duchennemd.org)
new window Logan Paige Foundation for Myotonic Dystrophy Description: Dedicated to educating potential parents about Myotonic Dystrophy and genetic testing. Information about fundraising, both for research and to assist people who cannot afford testing, news, stories, and about Logan Paige. (loganpaige.org)
new window MDA Europe Foundation Description: European fund raising foundation for Muscular Dystrophy in relation with Harley-Davidson events, H.O.G. Chapter events and Harley-Davidson dealers within the European community. (mdaeurope.org)
new window Muscular Dystrophy Association (Australia) Description: Extensive information on the range of disorders, research information and many links to onsite publications. Also provides an international support network with a chat service dedicated for use by the worldwide Muscular Dystrophy community. (mda.org.au)
new window Muscular Dystrophy Association (South Australia) Description: The Muscular Dystrophy Association of South Australia provides a range of individually designed support services for all persons with muscular dystrophy and neuromuscular disorders, their families and their carer/support provider, including therapy, information, equipment loan and counselling. (mdasa.org.au)
new window Muscular Dystrophy Association (USA) Description: Voluntary health agency providing information and supporting research into neuromuscular diseases, including Muscular Dystrophy. The MDA site contains information about many forms of muscular dystrophy, including lists of ongoing clinical trials, an "Ask the Experts" feature, and research updates. (mdausa.org)
new window Muscular Dystrophy Association of New Zealand Description: Organization dedicated to serving people with muscular dystrophy and other neuromuscular diseases who live in New Zealand. (mda.org.nz)
new window Muscular Dystrophy Association of Slovenia Description: Muscular Dystrophy Association of Slovenia (drustvo-distrofikov.si)
new window Muscular Dystrophy Association Singapore Description: Muscular Dystrophy Association Singapore (MDAS) is a self-help organization committed to uplift the lives of people with Muscular Dystrophy. (mdas.org.sg)
new window Muscular Dystrophy Campaign Northern Ireland Description: Northern Ireland branch of Muscular Dystrophy Campaign includes news, events, staff profiles, information about the Regional Muscle Clinic and a web directory. (mdcni.org.uk)
new window Muscular Dystrophy Canada Description: National voluntary agency committed to eliminating neuromuscular disorders. (mdac.ca)
new window Muscular Dystrophy Family Foundation Description: Nonprofit foundation that provides adaptive equipment and emotional support to individuals and families affected by any one of 40 neuromuscular diseases. (mdff.org)
new window Muscular Dystrophy Ireland Description: Voluntary organization in Ireland which provides support for people with muscular dystrophy and their families. (mdi.ie)
new window Parent Project Muscular Dystrophy Description: Parent Project Muscular Dystrophy is a not-for-profit organization founded in 1994 by parents of children with Duchenne and Becker Muscular Dystrophy. (parentprojectmd.org)
new window Parent Project Muscular Dystrophy in Nepal Description: Parent Project Muscular Dystrophy in Nepal focuses on Duchenne and Becker Muscular Dystrophy, by providing practical, medical and emotional support to the people and families affected by the condition. (parentprojectmd.org.np)
new window Parent Project UK Description: Parent Project UK is a charity set up by parents and supporters of boys with Duchenne and Becker Muscular Dystrophy that promotes research to find a cure or viable treatments. (ppuk.org)
new window Society for Muscular Dystrophy Information International Description: Features organization background, disease information, newsletters, membership information, resources, and contact details. (users.auracom.com)
new window The Muscular Dystrophy Campaign (UK) Description: A UK-based charity which funds medical research and support services for people with neuromuscular conditions. Site contains detailed information about duchenne, becker and many other conditions. Sections on education, care, physiotherapy, research and ways to help raise funds. (muscular-dystrophy.org)
 




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