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 MD-List [Recommended] Description: Mailing list to provide support for people affected by all different forms of Muscular Dystrophy. (health.groups.yahoo.com) |
| Christians With Duchenne Muscular Dystrophy Description: Mailing list for Christians who have Duchenne Muscular Dystrophy. (health.groups.yahoo.com) |
| DMD Pioneers Mailing List Description: A mailing list/support group for people living with Duchenne Muscular Dystrophy. Family, caregivers and friends of those affected by DMD may also participate. (dmdpioneers.org) |
| DMD Support List Description: Mailing list to provide support for people affected by Duchenne Muscular Dystrophy. (health.groups.yahoo.com) |
| DMD Transitions Description: Support and information helpful to the daily care of those with Duchenne Muscular Dystrophy, focusing on the transition from walking to adulthood (approx. ages 10-18) and adaptations parents find helpful. Those affected by DMD and BMD are welcome. (groups.msn.com) |
| Duchenne Muscular Dystrophy Support eGroup Description: International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy. (health.groups.yahoo.com) |
| Dysferlin Description: Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B. (health.groups.yahoo.com) |
| Fight for a Future Description: Group for friends and family of those with Duchenne and Becker Muscular Dystrophy, seeking a treatment for slowing down or stopping those diseases. (groups.msn.com) |
| FSH Friends Forum Description: Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy. (health.groups.yahoo.com) |
| FSH Muscular Dystrophy Description: Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends. (health.groups.yahoo.com) |
| Hope for MD Description: Hope for Muscular Dystrophy Community is a support group that provides emotional and educational support to family members of those with Muscular Dystrophy. (groups.msn.com) |
| Limb Girdle Muscular Dystrophy Description: Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy. (health.groups.yahoo.com) |
| MDA All the Way Description: Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends. (health.groups.yahoo.com) |
| Muscle Disease Description: Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases. (health.groups.yahoo.com) |
| Myotonic Dystrophy 2 Description: Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it. (health.groups.yahoo.com) |
| PROMM (Proximal Myotonic Myopathy) Description: Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation. (health.groups.yahoo.com) |
| Single Parent Cafe Description: Discussion group for single mothers whose children have Muscular Dystrophy. (health.groups.yahoo.com) |
| The Muscular Dystrophy Forum Description: An online support group for people affected by any neuromuscular condition. (health.groups.yahoo.com) |
