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 A Guide for Parents Description: This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living. (mda.org.au) |
| Becker Muscular Dystrophy Information Exchange Description: Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease. (beckermusculardystrophy.org) |
| DMD Information Description: Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options. (angelfire.com) |
| DMD Information and Resources for Teachers Description: Information for teachers of children with Duchenne Muscular Dystrophy (DMD). (uni-potsdam.de) |
| DMD Options Description: Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy. (dmdoptions.com) |
| DMD Pioneers Description: Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy. (dmdpioneers.org) |
| DoctorBach.com Description: This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care. (doctorbach.com) |
| Duchenne/Becker Muscular Dystrophy Description: Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy. (ygyh.org) |
| Duchennes Description: Provides links to medical and non-medical organizations and people with Duchennes problems. (ducennes.addr.com) |
| FSH Friends Description: This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy. (infowest.com) |
| FSH-MD Support Group Description: Provides support for those with Facio Scapulo Humeral and their carers. (fsh-group.org) |
| General Practice Notebook - Duchenne muscular dystrophy Description: Clinically-oriented information. (gpnotebook.co.uk) |
| HealtHub Description: A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations. (healthubs.com) |
| Living For Today, Preparing For Tomorrow Description: Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories. (livingfortoday.org) |
| MDA Ride For Life Description: Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May. (mdarideforlife.org) |
| Muscular Dystrophy Campaign Description: Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK. (see-search.com) |
| Muscular Dystrophy Community Description: Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers. (community.healingwell.com) |
| National Registry of Myotonic Dystrophy and FSHD Patients and Family Members Description: Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information. (urmc.rochester.edu) |
| NINDS Muscular Dystrophy Information Page Description: Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). (ninds.nih.gov) |
