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 Australia & NZ Epilepsy Support Group Description: Yahoo! Group for giving support and sharing information. (au.groups.yahoo.com) |
| Australia & NZ Epilepsy Support Group Description: Includes information, links and articles relating to epilepsy and related topics. (stixdesigns.com.au) |
| Brain Talk Groups - Neurology Support Groups - Epilepsy Description: Epilepsy Support Group sponsored by Massachusetts General Hospital. (neuro-mancer.mgh.harvard.edu) |
| Chrissy & Friends Description: Non-Profit organization that has support groups for children and teens with epilepsy and parents of children with epilepsy support groups in the NYC area. (chrissyandfriends.org) |
| Cymdeithas Epilepsi Ysbyty Gwynedd Description: Epilepsy Support Group in Wales, UK. (cymepilepsysbytygwyn.co.uk) |
| Doose or Myoclonic-Astatic Epilepsy Description: For parents of children who have Doose Syndrome a rare, severe, intractable epilepsy of early childhood. Group provides support for parents along with insight into management of this disorder. (health.groups.yahoo.com) |
| Doose Syndrome Description: This is a group about doose and it has links to other websites but almost all information can be seen by non members of the group. (groups.msn.com) |
| Epilepsy Action Description: Local branches of national organisation providing support, advice and information on living with epilepsy (beehive.thisisessex.co.uk) |
| Epilepsy Bereaved Description: Information about SUDEP and other epilepsy deaths. Bereavement support and information on SUDEP research. Free booklet for young people with epilepsy. (dspace.dial.pipex.com) |
| Epilepsy Community Description: Message boards and chat dedicated to sharing information, offering support, and coping strategies to better manage this disease. Community moderated by volunteers. (community.healingwell.com) |
| Epilepsy Discussion Board Description: A forum for people affected by this disorder. (debraboard.org) |
| Epilepsy Message Board Description: Healthboards.com message board for information and support on epilepsy. (healthboards.com) |
| Epilepsy Penarth Description: A support group situated in South Wales, open to anyone with epilepsy to join for help and support. (epilepsypenarth.ik.com) |
| Epilepsy Support Description: Maintained by someone with the disease, this site offers support, advice, and useful links. (epilepsysupport.org.uk) |
| Epilepsy Support Group Description: Providing world wide support for people with epilepsy. Includes FAQ's, links, support groups and a pen pal site. (geocities.com) |
| Epilepsy Support Group Eastwood, Sydney Australia Description: Offers information, events, issues, links and contact details. (users.bigpond.com) |
| Epilepsy Support Group Shetland Description: Offers an extensive FAQ's and a section talking about the different drugs to control epilepsy. (esgs.org.uk) |
| Epilepsy Surgery Club on Yahoo! Description: Details about this group which is for those who have thought of (or had) having brain surgery or Vagus Nerve Stimulator surgery. Registration required. (groups.yahoo.com) |
| Epilepsy-l: Epilepsy support group Description: An E-mail based support group for people with epilepsy and those who care about and for them. (home.ease.lsoft.com) |
| Lafora body disease research talk Description: This is a site about lafora body disease it has a message board and a links page. (groups.msn.com) |
| Parents of Kids with Epilepsy UK Description: A support web site for parent's of children with Epilepsy. Conversations via our mailing lists and web content. This group was designed by parent's for parent's. (pokwe.org.uk) |
| People Incorporated Epilepsy Services Description: A guided independent living experience designed to prepare adults diagnosed to live and work on their own. Includes services, history, gallery, opportunities and FAQs. (orgsites.com) |
| PokweUK Description: A UK based supporting website containing epilepsy information, children's stories and a forum for parents of children with this disorder. (pokweuk.org) |
| The VNS Message Board Description: A message board designed for information exchanged related to the Vagus Nerve Stimulator. (s4.invisionfree.com) |
| Weston Super Mare Branch of Epilepsy Action Description: Provides information about coping with this disease, seizures and convulsions. Details about the various types, and provides free help and advice through the use of its email and telephone help lines. (wsm.inuk.com) |
| Yahoo! Clubs: Epilepsy Support Group Description: Supportive club to help those with this disease. Includes free membership, message boards and chat room. Also joining instructions. (groups.yahoo.com) |
| Yahoo! Groups Description: Yahoo! Directory: As of the entry date, there are 103 epilepsy groups on Yahoo! (dir.groups.yahoo.com) |
| Yahoo! Groups : adultswithepilepsy Description: This club is for adults (those 18 and older) to discuss their experiences with epilepsy, including causes, treatment and coping skills. (groups.yahoo.com) |
| Yahoo! Groups : childhoodepilepsy Description: This mailing list is intended to support parents and other care-givers of children diagnosed with a form of epilepsy. (groups.yahoo.com) |
| Yahoo! Groups : Christian-Epilepsy-Support Description: Christian oriented support for people with Epilepsy or family and friends of people with Epilepsy. (groups.yahoo.com) |
| Yahoo! Groups : ChristianEpilepsyPrayerGroup Description: Are you a Christian living with or caring for someone with epilepsy? ... (groups.yahoo.com) |
| Yahoo! Groups : Dating-and-Married-Life-with-Epilepsy Description: Made for people to discuss issues that come up when they are dating and married, including handling different situations, embarrassment, children, and fear. (groups.yahoo.com) |
| Yahoo! Groups : doosesyndrome Description: For parents of children who have, or who may have Myoclonic-Astatic Epilepsy, otherwise known as Doose Syndrome, a rare, severe, intractable epilepsy of early childhood. (groups.yahoo.com) |
| Yahoo! Groups : epilepsy Description: For people with or know someone with Epilepsy. A place to talk, share stories, and for moral support. All ages welcome. (groups.yahoo.com) |
| Yahoo! Groups : Epilepsy-Kids Description: Epilepsy-Kids offers support and information for parents of children diagnosed with any form of epilepsy. (groups.yahoo.com) |
| Yahoo! Groups : epilepsychat Description: A Place For Chat, Info, Support And To Have Fun (groups.yahoo.com) |
| Yahoo! Groups : epilepsycircle Description: This support group is for all who have an interest in epilepsy, whether it is for you, a family member, a friend, pupil or a child that has a seizure disorder or epilepsy. (groups.yahoo.com) |
| Yahoo! Groups : epilepsycured Description: We are people sharing information on curing / preventing epilepsy - seizures. This is a support group for patients, parents, children, familly members ... anyone and everyone. (groups.yahoo.com) |
| Yahoo! Groups : epilepsysupport4kids Description: This group is a support group for kids with epilepsy, kids interetsed in improving their condition by natural means. (groups.yahoo.com) |
| Yahoo! Groups : Epilepsy_Advocates Description: Our group is made up of people that suffer from Epilepsy, parents of children with Epilepsy, people whom have previously had Epilepsy and friends of those suffering from Epilepsy. (groups.yahoo.com) |
| Yahoo! Groups : Epilepsy_Support_And_Education Description: We are a growing community to help bring people with epilepsy from all corners of the world to share experiences, thoughts, and provide information. All ages are welcome and you don't have to be epileptic to join. (groups.yahoo.com) |
| Yahoo! Groups : Epilepsy_Surgery_Group Description: We deal with those who have had brain surgery, Vagus Nerve Stimulator surgery, and Gamma Knife Radiosurgery. Our members are here to help answer any questions you may have. All are welcome, whether you are a surgery candidate or not. (groups.yahoo.com) |
| Yahoo! Groups : ketogenic Description: This is a support group for parents, family members, and care givers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders. (groups.yahoo.com) |
| Yahoo! Groups : KuekidsAustralia Description: The Kuekids Australia mailing list is to help parents, families and friends of children using the ketogenic diet who may also have food intolerance problems. (groups.yahoo.com) |
| Yahoo! Groups : lennox-gsibs Description: Lennox Gastaut is a severe form of Epilepsy. This group is for the siblings (brothers & sisters) of those affected by LGS, or a seizure disorder. (groups.yahoo.com) |
| Yahoo! Groups : parents-of-kids-with-epilepsy Description: This Group is for Parents of Children With Epilepsy. (groups.yahoo.com) |
| Yahoo! Groups : Rare_Epilepsy_Syndromes Description: Rare epilepsy is very difficult on all families involved. This group has been made to help educate and support these families. Rare epilepsy's include. ESES/CSWS, LKS, LGS, Begnign Rolandic, and any other hard to recognize epilepsy. (groups.yahoo.com) |
| Yahoo! Groups : real_epilepsy Description: A group based in Indiana. Epilepsy and seizure disorder resources and support. (groups.yahoo.com) |
| Yahoo! Groups : seizurealertdogs Description: This group unites people who benefit from seizure alert or assistance dogs as well as people with epilepsy who benefit from a dog's companionship. We also Welcome people who want to learn more about these wonderful dogs. (groups.yahoo.com) |
| Yahoo! Groups : TLE Description: Discussion of temporal lobe epilepsy and/or partial complex seizure disorder. For sufferers and friends/family of sufferers. (groups.yahoo.com) |
| Yahoo! Groups : ToddlerswEpilepsy Description: This is a group for parents with toddlers that have Epilepsy. Parents with infants are welcome too. (groups.yahoo.com) |
| Yahoo! Groups : wivesofmenwithepilepsy Description: It is the hope of this club to address problems, offer support and encouragement to the wife whose husband has epilepsy. (groups.yahoo.com) |
| Yahoo! Groups : worldofepilepsy Description: For people around the globe who have epilepsy and would like to share their recent or previous experience with epilepsy. (groups.yahoo.com) |
