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 Intracranial Hypertension Research Foundation [Recommended] Description: Nonprofit organization supporting research and the causes and treatment of IH (pseudotumor cerebri). Information about the condition, patient registry, research news, and links to related sites. (ihrfoundation.org) |
| Benign Intracranial Hypertension Description: Within this site you will find information regarding symptoms, possible causes, and diagnosis of BIH. The personal experience of the author of the site are also shared here, along with multiple message boards to talk with others who have BIH (also known as Pseudotumor Cerebri). (mjmoore.co.uk) |
| BIH Description: This site provides common symptoms associated with Benign Intracranial Hypertension. View the steps to diagnosis, and visit the definitions page for explanations to the most common terms associated with BIH. (angelfire.com) |
| Delphi PTC Forums Description: This site is made up of message boards created as a source of support for those living with Pseudotumor Cerebri. You can also join us for a chat in one of the PTC Support chat rooms. (forums.delphiforums.com) |
| Dutch PTC Support Group Description: Viewable in both Dutch and English, this site is maintained by the Dutch PTC Support Group. Subscribe to the monthly newsletter, read personal PTC stories and an informal survey conducted by the managers of this group of the members; along with the survey results.There are also many article and links related to PTC. (home.wxs.nl) |
| Living with Pseudotumor Cerebri Description: Includes an online book called "The PTC Primer," an explanation of pseudotumor cerebri, newsletters, sign-up for a patient database, and links to related sites and support groups. (findmemyhouse.com) |
| NORD (National Organization for Rare Disorders) Description: National Organization of Rare Disorders (NORD) database, which contains information about over 1,100 rare diseases. A discussion about Pseudotumor Cerebri contains common signs and symptoms, and provides links to organizations related to PTC. (rarediseases.org) |
| Pseudotumor Cerebri Informational Homepage Description: The Pseudotumor Cerebri Informational Homepage offers an explanation of Pseudotumor Cerebri with tips on improving headache pain, along with diet modifications. Links for support are also included. (geocities.com) |
| Team IIH Description: This is a site for those searching for information about Idiopathic Intracranial Hypertension, (also known as Pseudotumor Cerebri and Benign Intracranial Hypertension). It has pages written in Swedish, English, Italian, and German. (groups.msn.com) |
| The Pseudotumor Cerebri Community, Intracranial Hypertension Description: Welcome to the Pseudotumor Cerebri Community. We're here to support and inform those living with a Neurological Condition called Pseudotumor Cerebri (also known as Intracranial Hypertension); and their friends and families. Includes multiple message boards, scheduled online chats with other members, and helpful links and articles related to PTC. (groups.msn.com) |
| Yahoo! Groups : PTC Description: If you are looking for information and support regarding PTC, join our PTC email support group that currently has 358 members. This group allows email attachments, so please be careful of viruses that can be passed via email. (groups.yahoo.com) |
| Yahoo! Groups: PTC-Support-Group Description: High-volume email support group for people afflicted with pseudotumor cerebri. (groups.yahoo.com) |
