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 A Diary about Marfan's Description: Marfan's patients diary of the diseases events in her life. Includes a list of links. (angelfire.com) |
| American Heart Association - Marfan's Syndrome Description: Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions. (americanheart.org) |
| Canadian Marfan Association Description: Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease. (marfan.ca) |
| Central Ohio Marfan Support Group Description: Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings. (homestead.com) |
| Children's Heart Institute: What is Marfan Syndrome? Description: Includes information on heart, skeletal, eye, other, causes, risks, management, and Surgery. Assisted by many graphics and a "tour" to help understand the disease. (childrenheartinstitute.org) |
| eCureMe.com -- Marfan's Syndrome Description: Description, symptoms, diagnoses, treatment and other information with a couple of similar disorders for comparison. (ecureme.com) |
| Guide to Marfans Syndrome Description: Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals. (marfanssyndrome.net) |
| International Federation of Marfan Syndrome Organizations Description: A global information center providing links to Organizations around the world. (marfanworld.org) |
| Jeanette Navia's Marfan Life Website Description: Including lists of penpals and other ways to connect with the community as well as information about the Syndrome. (marfanlife.org) |
| Life and Issues of Marfan's Syndrome Description: Personal site by which describes the pathology and gives a bit of advice. (io.com) |
| Living With Marfans Description: This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way. (jrmarfan58.com) |
| Marfan Association UK Description: The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue. (marfan.org.uk) |
| Marfan Support and Information Description: Support group in New South Wales, Australia. (marfan.net.au) |
| Marfan Syndrome Description: Article from eMedicine. (emedicine.com) |
| Marfan Syndrome Description: Online interactive user community. (marfansyndrome.us) |
| Marfan Syndrome Description: A Question-Answer format page of information. (medicinenet.com) |
| Marfan Syndrome Description: Online chapter from The Merck Manual of Medical Information. (merck.com) |
| Marfan Syndrome Description: Comprehensive guide to this connective tissue disease. (ygyh.org) |
| Marfan Syndrome Forum Description: Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research. (hometown.aol.com) |
| Marfan Syndrome: Does Diet Play a Role Description: Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet. (ctds.info) |
| Marfan-List Description: Information about an e-mail mailing list. Also includes links to other online support groups. (marfan-list.org) |
| Marfans Research Foundation Description: Irish charity with information on fund raising activities and the condition. (marfansresearchfoundation.ie) |
| MFS Type 1 Fibrillin Gene Description: A comprehensive site including major resources listed as well as genetic information. (www3.ncbi.nlm.nih.gov) |
| National Marfan Foundation Description: Providing accurate and timely information about the disorder to patients, family members and physicians. (marfan.org) |
| Polish Marfan Association Description: General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations. (marfan.sprint.pl) |
| Questions and Answers about Marfan Syndrome Description: From the National Institutes of Health. (niams.nih.gov) |
| Slovak Marfan Association Description: The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care. (members.fortunecity.com) |
| South African Marfan Syndrome Organisation Description: Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis. (marfan.org.za) |
| Sports and Marfan Syndrome Description: Article on the risks of sports participation. (physsportsmed.com) |
| Swedish Marfan Association Description: Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association. (user.tninet.se) |
| The Mystery of Akhenaten: Genetics or Aesthetics? Description: A history of the pharoah along with theories applied to what he may have had, including Marfan's. (heptune.com) |
| Theresa E. Pageau - A Memorial Tribute Description: A tribute to a patient with this disease accompanied by information and links related to donating. (solo23.abac.com) |
| Univ. of Washington - Marfan Syndrome Description: What the disease is and includes the impacts on daily life. (orthop.washington.edu) |
| University College London: The Timing of Elective Aortic Root Replacement in the Marfan Syndrome Description: Includes a survey for study and links to useful sites. (ucl.ac.uk) |
| Yahoo! Support Group Description: Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person. (health.groups.yahoo.com) |
