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 Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome [Recommended] Description: While EDS and Arthritis are two separate diseases, there are many characteristics in common. Additionally, EDS patients are at risk of developing OA. In addition to EDS information, site provides valuable pain and life management resources for patients. (arthritis.org) |
| Ehlers-Danlos National Foundation [Recommended] Description: American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups. (ednf.org) |
| "China Doll" Syndrome Description: Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included. (moondancer.150m.com) |
| American Massage Therapy Association - The Hypermobile Client/Therapist Description: Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ. (amtamassage.org) |
| Arthritis Insight-EDS Tips for Surgery Description: If you or a family member with EDS needs surgery, read this and share it with your doctor. (arthritisinsight.com) |
| Coalition for Heritable Disorders of Connective Tissue Description: Research organization for genetic connective tissue disorders. (chdct.org) |
| Department of Pathology Description: Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS. (pathology.washington.edu) |
| Diagnose-Me: Treatments: Prolotherapy Description: Some EDS patients have obtained excellent results with prolotherapy treatments. (diagnose-me.com) |
| EDS Living - a Journal Description: Learn what it's like to live with EDS for this woman and her children by following her online journal. (livejournal.com) |
| EDS Today Description: The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide. (edstoday.org) |
| Ehlers Danlos Foundation of New Zealand Description: Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public. (edfnz.org.nz) |
| Ehlers-Danlos Hope Description: A Syrian patient gives a personal plea for better medical support and research. (ehler.8m.com) |
| Ehlers-Danlos National Foundation - Michiana Branch Description: Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps. (smackdabdesign.com) |
| Ehlers-Danlos Syndrome Information Description: A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department. (orthop.washington.edu) |
| Ehlers-Danlos Syndrome Linked to Orthostatic Intolerance Description: Explores connection between EDS and low blood pressure. (potsplace.com) |
| Ehlers-Danlos Syndrome Medical Information Description: Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more. (medicinenet.com) |
| Ehlers-Danlos Syndrome Support Group Description: This site offers extensive information for patients and doctors, plus links. (ehlers-danlos.org) |
| Ehlers-Danlos Syndrome, Philadelphia Chapter Description: Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities. (hometown.aol.com) |
| Electronic Textbook of Hand Surgery Description: Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated. (eatonhand.com) |
| eMedicine - Ehlers-Danlos Syndrome Description: Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments. (emedicine.com) |
| HealthWise: Ehlers Danlos Syndrome Description: Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types. (hw.healthdialog.com) |
| Hypermobility & Fibromyalgia Support Site Description: Offers information & support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders. (anaiis.tripod.com) |
| Hypermobility Forum Description: This is a moderated discussion board for Hypermobility Syndrome, Marfan, and Ehlers-Danlos. Includes personal experiences, traditional and alternative treatment, and pain management tips from fellow patients. (marge.com) |
| Hypermobility Portal Description: Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders. (hypermobility.objectis.net) |
| New York / New Jersey Ehlers-Danlos and Hypermobility Description: Offers a support, message and discussion center for NY/NJ ehlers-danlos patients. (disc.server.com) |
| NORD: Ehlers-Danlos Syndrome Description: Information about EDS from the National Organization for Rare Disorders. (rarediseases.org) |
| Oral Manifestations of Ehlers-Danlos Syndrome Description: EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail. (cda-adc.ca) |
| Sandy Simmons' Connective Tissue Disorder Site Description: Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others) (ctds.info) |
| The Canadian Ehlers-Danlos Association Description: Working together to provide assistance, support and resources for people living with this rare genetic disorder. (ehlersdanlos.ca) |
| The Hypermobility Syndrome Association Description: HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, message boards, and much more. (hypermobility.org) |
| The Swedish Ehlers-Danlos Syndrome National Association Description: The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links. (ehlers-danlos.se) |
| Voluntary Recall of Vioxx Description: Press release about the recall of Vioxx, a drug commonly used to treat EDS-related arthritis. If you have been taking this medication please contact your doctor immediately for instructions. (vioxx.com) |
| Wheeless Textbook of Orthopaedics Description: Technical information on joints, how they should work, and treatments for when they do not. (wheelessonline.com) |
