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Brittle Bone Society Description: The UK charity providing support for people with osteogenesis imperfecta. (brittlebone.org) |
Children's Brittle Bone Foundation Website Description: US organization. Online grant and fellowship applications with news about recent and upcoming events. (cbbf.org) |
Osteogenesis Imperfecta Description: Article from eMedicine. (emedicine.com) |
Osteogenesis Imperfecta Description: Fact sheets from the National Institutes of Health. (osteo.org) |
Osteogenesis Imperfecta Description: Overview from the University of Maryland. (umm.edu) |
Osteogenesis Imperfecta Federation Europe Description: Information on Osteogenesis Imperfecta around Europe (oife.org) |
Osteogenesis Imperfecta Foundation Description: Supports and encourages medical research and disseminates information to patients, their families, and medical professionals (oif.org) |
Osteogenesis imperfecta hub Description: Links to overviews, clinical trials, images, research articles and abstracts for osteogenesis imperfecta. (genomelink.org) |
Osteogenesis Imperfecta Information Description: Resources gathered by the mother of a child with the disease. Includes a personal page about her son Jojo, his disease, treatment, and progress. (ptialaska.net) |
Osteogenesis Imperfecta: The Links to Nutrition Description: Reviews the possible role of nutrition in this disorder. Questions whether it is solely a genetic condition. (ctds.info) |
The Bone Page Description: Bisphosphonate FAQ, bone density, and other information for families dealing with OI. (geocities.com) |
The Osteogenesis Imperfecta Mailing List Description: For the discussion of any issues relating to OI. Open to both professionals and families. (ptialaska.net) |