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home > genetic disorders > organizations
Genetic Disorders - OrganizationsInformation / Diagnosis / Treatment / Prevention
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American Society of Genetic Disorders Description: Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics. (ashg.org) |
| Australian MPS & Related Diseases Society Description: Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events. (mpssociety.org.au) |
| Dana's Angels Research Trust Description: Information from this charitable organization on Niemann-Pick Type C disease and how individuals can contribute funds for research for this fatal childhood disease. (danasangels.org) |
| Genetic Information and Patient Services, Inc (GAPS) Description: Links to online definitions, information sites, and support groups for genetic disorders and birth defects. (icomm.ca) |
| Genetic Interest Group Description: Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided. (gig.org.uk) |
| Hereditary Disease Foundation Description: Information about this non profit organization, news, newsletters, recommended reading and contact details. (hdfoundation.org) |
| Hereditary Hemorrhagic Telangiectasia Foundation International, Inc. Description: Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general public. (hht.org) |
| Lysosomal Diseases New Zealand Description: Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases. (ldnz.org.nz) |
| The Ryan Foundation Description: A non-profit, all-volunteer organization dedicated to supporting research for, and the families of, those suffering from Mucopolysaccharidosis, or MPS. Find disease info, articles and links. (ryanfoundation.org) |
Notes: Healthcyclopedia presents health information in the form of websites and articles that encompass conventional medicine and alternative treatments. Under no circumstances can it recommend or endorse a specific therapy or treatment.
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