| |
Carolina Fragile X Project Description: A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them. (fpg.unc.edu) |
Conquer Fragile X, Inc. Description: Creating a virtual research center in Israel to find a cure. (conquerfragilex.org) |
Fact Sheets for Health Professionals: Fragile X Syndrome Description: From the Victorian Government, Australia. (hnb.dhs.vic.gov.au) |
Fragile X Association of Australia Description: Information on this disease, medical aspects, education, references, contacts and what's new in Australia (fragilex.org.au) |
Fragile X Association of Southern California Description: Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation. (fraxsocal.org) |
Fragile X Fact's Page Description: Describing Fragile X Syndrome. (ich.ucl.ac.uk) |
Fragile X Research Foundation of Canada Description: Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join. (fragile-x.ca) |
Fragile X Syndrome Description: Single page on recognition of the condition in young children. (home.coqui.net) |
Fragile X Syndrome - Diagnostic and Carrier Testing Description: A Policy Statement from the American College of Medical Genetics. (faseb.org) |
FRAXA Research Foundation Home Page Description: Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's. (fraxa.org) |
Living with Fragile X Description: One family's account of raising 3 children with Fragile X. (fragilex.ca) |
Maryland Fragile X Resource Group Description: A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources. (mdfragilex.org) |
Online Support Group Description: Support group for Family's who are dealing with Fragile X Syndrome. (groups.yahoo.com) |
Pediatric Oncal Description: Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations. (pediatriconcall.com) |
Queensland Fragile X Association Description: About QFXA, news, events, links and contacts. Also information of fragile X syndrome. (cwpp.slq.qld.gov.au) |
The National Fragile X Foundation Description: Features information about the disease, its teatment, and inheritance. (fragilex.org) |