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home > genetic disorders > cystic fibrosis > organizations

Cystic Fibrosis - Organizations

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Web Directory:
      new window Boomer Esiason Foundation Description: A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter. (esiason.org)
new window Canadian Cystic Fibrosis Foundation Description: Support and resources. Located in Toronto, Ontario. (cysticfibrosis.ca)
new window CCFF Sudbury Chapter Description: Website of the Canadian Cystic Fibrosis Foundation Sudbury Chapter. Provides information on local events and information about Cystic Fibrosis. (cyberbeach.net)
new window Chicago Cystic Fibrosis Awareness Day Description: Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives. (chicagocfawareness.org)
new window Cochrane Cystic Fibrosis & Genetic Disorders Review Group Description: An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders. (liv.ac.uk)
new window Concerned Friends of Cystic Fibrosis in Israel Description: Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information. (cfcfisrael.org)
new window Cystic Fibrosis Australia Description: Information about the organization and its aims and objectives, CF facts, events, links and contact details. (cysticfibrosisaustralia.org.au)
new window Cystic Fibrosis Foundation Description: Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy. (cff.org)
new window Cystic Fibrosis Nurses: the International Specialist Group Description: Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis. (cfnurses.net)
new window Cystic Fibrosis Victoria Inc Description: Information about Cystic Fibrosis and the organisation, online chat room and message board. (cfv.org.au)
new window Cystic Fibrosis Victoria Inc Description: Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events (cysticfibrosisvic.org.au)
new window Cystic Fibrosis Worldwide Description: International Association of Cystic Fibrosis Adults web site and International Cystic Fibrosis Mucoviscidosis Association. (iacfa.org)
new window Dream Holidays Charity Description: The Dream Holidays Charity helps families who have a child with Cystic Fibrosis, a genetic life threatening disease. We arrange holidays and wishes for these children with no cost to the family. (cfdreamholidays.com)
new window Elizabeth Nash Foundation Description: Supports causes reflective of Elizabeth Nash's interests and values with a specific emphasis on efforts that improve the lives of those affected by Cystic Fibrosis. (elizabethnashfoundation.org)
new window European Cystic Fibrosis Society Description: ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis (ecfsoc.org)
new window European Cystic Fibrosis Thematic Network Description: Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry. (cfnetwork.be)
new window I.C.F.M.A. Description: A not-for-profit organization for increasing cystic fibrosis awareness. (icfma.org)
new window Lungs for Life Foundation Description: Provides financial assistance to cystic fibrosis and lung transplant patients. (Lungsforlife.org)
new window Milan Foundation Description: Created in the name of Milan Brown who, at the age of 3 1/2, was diagnosed with Cystic Fibrosis. Includes a calendar, stories and poems about CF, how to donate, and the foundation's mission. (milanfoundation.org)
new window National Cystic Fibrosis Awareness Committee (NCFAC) Description: Helps to advance the public awareness of the genetic disease. Site includes mission statement and message board. (cfawareness.org)
new window New Jersey State Organization of Cystic Fibrosis Description: NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a Q&A's, news, services offered and coming events. (njsocf.org)
new window Reaching Out Foundation Description: Provides information on the programs provided by this foundation, a personal story of a person with CF who had a double lung transplant, general information on CF, and how you can donate. (reachingoutfoundation.org)
new window The Genentech Endowment for Cystic Fibrosis Description: An independent, non-profit endowment dedicated to expanding access to PulmozymeŽ (dornase alpha) therapy to qualifying un-insured and under-insured CF patients. Find the eligibility and how to apply. (genentechcfendowment.org)
new window The Victoria Foundation Description: Helps young adults with Cystic Fibrosis and assist parents in caring for their son or daughter at home, with the support of the Southampton CF adult team. (members.lycos.co.uk)
new window Victoria Chapter, Canadian Cystic Fibrosis Foundation Description: The Victoria Chapter, one of 51 Chapters of the Canadian Cystic Fibrosis Foundation, works to provide a brighter future for every person born with cystic fibrosis. It assists in the quest to find a cure or control for the disease. (victoriacfchapter.ca)
 




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