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Brianna: Canavan Leukodystrophy Description: Personal page about how this neurological disorder affects children and their families. Provides links to resources and support. (hometown.aol.com) |
Epilepsy in Children Description: Explores what epilepsy is, how it is diagnosed and surgical and other treatment options. (ucneurology.uchicago.edu) |
Epilepsy in Young Children Description: A support platform for parents and other caregivers of children with epilepsy, consisting mostly of stories of individual children. (kidsepilepsy.com) |
Hope for Muscular Dystrophy Description: Emotional and educational support for families who would like to learn more about this disease. Includes articles and stories. (hopeformd.org) |
Integrated Neurocare Description: An independent service for children and young people and their families in Britain and abroad who may have a suspected neurological or neurodevelopmental impairment. (integratedneurocare.com) |
International Foundation for Alternating Hemiplegia of Childhood Description: Run by parents of children with AHC. Provides information, support and links regarding this rare neurological disorder. (ahckids.org) |
L'Oiseau Bleu (The Blue Bird) Description: Non-profit organisation to fight against Sclerosing Subacute Panencephalitis, a.k.a. Van Bogaert Disease, a progressive neurological disorder caused by the measles virus. Includes information about the disease. (oiseau.bleu.free.fr) |
Landau-Kleffner Syndrome Description: Information sheet compiled by National Institute of Neurological Disorders and Stroke. (ninds.nih.gov) |
NINDS: Infantile Spasms Description: Information including description, treatment options, prognosis, research and resource links. (ninds.nih.gov) |
Spinal Muscular Atrophy (SMA) Description: Provides information aimed at health professionals about this disease. Includes definition, classification, epidemiology, clinical features, therapy and research into the congenital condition. (mdausa.org) |
Understanding Spinal Muscular Atrophy Description: Offers extensive information for parents about the three forms of this disease: type I (Werdnig-Hoffman disease), type II, and type III (Kugelberg-Welander). (fsma.org) |